{"id":51,"date":"2023-04-26T03:15:41","date_gmt":"2023-04-26T03:15:41","guid":{"rendered":"https:\/\/sjogrenssyndromesupport.org\/?page_id=51"},"modified":"2023-04-26T03:23:41","modified_gmt":"2023-04-26T03:23:41","slug":"welcome-members-of-sjogrens-syndrome-support","status":"publish","type":"page","link":"https:\/\/sjogrenssyndromesupport.org\/index.php\/welcome-members-of-sjogrens-syndrome-support\/","title":{"rendered":"Welcome Members of Sjogren&#8217;s Syndrome Support!"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">Our mission at Ben\u2019s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">This is an online support group for patients, friends and families affected by Sjogrens. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Sj\u00f6gren\u2019s Syndrome is an autoimmune disease. Autoimmune diseases feature the abnormal production of extra antibodies in the blood directed against various tissues of the body, which tends to lead to inflammation. The hallmark symptom of Sj\u00f6gren\u2019s syndrome is generalized dryness, typically xerostomia (dry mouth) and keratoconjunctivitis sicca (dry eyes), known as sicca symptoms. Sj\u00f6gren\u2019s syndrome may cause skin, nose and vaginal dryness and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system or brain.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Connect with other patients and visit <a href=\"https:\/\/forum.sjogrenssyndromesupport.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">Sjogren&#8217;s Syndrome Support Community.<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">SjogrensSyndromeSupport.org is a virtual peer-to-peer community intended to be a safe place for patients and family members as young as age 12, to visit for information, discussion, venting and mutual support. Members come from many backgrounds. Some have a strong religious faith, and others no faith; some are children and others adults, rich and poor, graduate educated or taught by life. Our common denominators are that we share a life journey, and we try to help each other.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Though we get occasional visits from medical doctors, the site is not routinely supported by medical professionals. Nobody here can diagnose you or tell you what your treatment choices \u201cshould\u201d be. We might inform your choices by sharing individual experiences and information developed by study as lay people. But&nbsp; Sjogren&#8217;s Syndrome Support is not intended to replace the advice or treatment of licensed medical professionals. Readers should validate any information they take away from here, against the experience of a licensed medical doctor. Site owners and moderators are not legally responsible for the accuracy of information shared on the site.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Visitors should also be aware that our discussion forums and groups are publicly accessible and frequently searched by Google. Thus your speech here should be considered \u201cpublic\u201d. If you\u2019re tempted to write something about another person that you wouldn\u2019t say to their face, then we counsel you to think first. Speech can be consequential.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Sjogren&#8217;s Syndrome Support is supported by unpaid volunteer moderators who validate and register new members and monitor ongoing discussions, photo postings and Blogs. Very often, moderators are themselves patients or family members of patients. Most of the time, moderators tend to keep a low profile, except in their roles as members of the community who may be well-informed about the state of medicine and research.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Our mission at Ben\u2019s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them. This is an online support group for patients, friends and families affected by Sjogrens. Sj\u00f6gren\u2019s Syndrome is an [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-51","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Welcome Members of Sjogren&#039;s Syndrome Support! - Sj\u00f6gren\u2019s Syndrome Support<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sjogrenssyndromesupport.org\/index.php\/welcome-members-of-sjogrens-syndrome-support\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Welcome Members of Sjogren&#039;s Syndrome Support! - Sj\u00f6gren\u2019s Syndrome Support\" \/>\n<meta property=\"og:description\" content=\"Our mission at Ben\u2019s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them. 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